{"id":6117,"date":"2018-05-23T16:36:03","date_gmt":"2018-05-23T20:36:03","guid":{"rendered":"https:\/\/medisafeapp.wpengine.com\/medisafer-story-lucy\/"},"modified":"2018-05-23T16:36:03","modified_gmt":"2018-05-23T20:36:03","slug":"medisafer-story-lucy","status":"publish","type":"post","link":"https:\/\/medisafeapp.com\/ru\/medisafer-story-lucy\/","title":{"rendered":"Medisafer Story: Lucy"},"content":{"rendered":"

Meet Lucy! She is a long time Medisafer and a recent University of Virgina grad, still based in Virginia. In her last year of college she went from being a member of the marching band and training for a 10K, to experiencing fainting spells for seemingly no reason. Worried that the situation might be a heart condition, Lucy started searching for a solution. Instead of a heart condition Lucy was diagnosed with Ehlers-Danlos syndrome (EDS)<\/a> and Postural orthostatic tachycardia syndrome (POTS).<\/p>\n

EDS is a muscle connectivity disorder and POTS is a condition where too little blood returns to the heart when standing up after lying down. For more info on both, follow the links!<\/p>\n

Still in her senior year of school, Lucy was determined to finish her education. No longer able to type due to muscle weakness, she dictated her papers and skyped into classes when she couldn\u2019t walk. To manage the multitude of medications she was now taking, Lucy turned to Medisafe!<\/p>\n

One of the common issues Lucy faces in brain fog and forgetfulness. Medisafe helps her stay on track and make sure she\u2019s not just relying on her memory to know if she\u2019s taken her daily dose.<\/p>\n

When we asked Lucy what her experience has been managing and coordinating her care, she said it\u2019s both difficult and critical to advocate for yourself. \u201cI have a three ring binder<\/strong> which I basically always take with me,\u201d says Lucy. That binder fills in the blanks left if she\u2019s seeing a new doctor not familiar with her case, or sees a specialist who hasn\u2019t communicated with her other physicians. Showing that she\u2019s keeping up with her meds is just one of the important pieces of info her doctors need.<\/p>\n

Lucy\u2019s message to those newly diagnosed: there\u2019s still a choice. \u201cIt\u2019s a choice, you can choose to be happy about what is within your power or choose to let it get you down. I\u2019m not saying it doesn\u2019t get hard, but you can choose to roll with it or to allow yourself to be overcome by it,\u201d says Lucy. \u201cSociety has a way of telling us that people with chronic illness should just stay home, and that we can\u2019t be productive in the workforce. I disagree.»<\/p>\n

«You don\u2019t have to listen to the wider social narrative. I\u2019m just as valuable as those without a disability, if anything it gives me a different perspective.»<\/p><\/blockquote>\n

Currently, Lucy is an academic tutor and a research assistant. She plans to attend law school in the future, and you can find her on Instagram @lucytrieshmann<\/a> and learn more about her EDS advocacy. Interested in having Lucy speak at your next engagement? Find her here<\/a> or contact her at lucy.treishmann@gmail.com<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Meet Lucy! She is a long time Medisafer and a recent University of Virgina grad, still based in Virginia. In her last year of college she went from being a member of the marching band and training for a 10K, to experiencing fainting spells for seemingly no reason. 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